- Sense - the national voluntary organisation working with people of all ages who are deafblind or have associated disabilities. Provides information on Usher syndrome, CHARGE and congenital rubella syndrome.www.sense.org.uk
- The Australian DeafBlind Council was set up following the National Deafblind Conference in Melbourne in 1993 as a network for deafblind people or other interested people.home.internex.net.au/~dba