UNITED LEUKODYSTROPHY FOUNDATION 2304 Highland Drive Sycamore, Illinois USA 60178 Phone: (800) 728-5483 FAX: (815) 895-2432 The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, ...
This is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease. In addition, it provides assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness; acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. The ULF is supported solely by donations.
www.familyvillage.wisc.edu/lib_leukodystrophy.html
Metachromatic Leukodystrophy information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
www.ninds.nih.gov/health_and_medical/disorders/meta_leu_doc.htm
Website about Aicard-Goutieres syndrome for families !
www.aicardi-goutieres.com
A CHORUS notecard document about leukodystrophy ...
chorus.rad.mcw.edu/doc/00231.html
Alexander Disease information sheet compiled by NINDS.
www.ninds.nih.gov/health_and_medical/disorders/alexand_doc.htm
Leukodystrophy information sheet compiled by NINDS.
www.ninds.nih.gov/health_and_medical/disorders/leukodys_doc.htm
Alexander disease is a rare, genetic, degenerative disorder of the nervous system.
healthlink.mcw.edu/article/921383447.html
