EDNF - Ehlers-Danlos National Foundation - Providing updated information to those affected by Ehlers-Danlos syndrome.
A Worldwide Support Site for patients with EDS, Doctors and other medical staff requiring concise information. Fact sheets about all aspects of the disease, how to diagnose it, treat it, and live with it. Contact with other support groups ...
Ehlers Danlos Foundation of New Zealand, medical information, original articles and links to other international EDS organizations ...
Welcome to EDS Today - the newsletter published for, by, and about people with Ehlers-Danlos Syndrome. Our Mission To provide information and support to people living with EDS, their families, and the medical community.
Kathy Seslar, Tomahawk, WI, suffers from Ehlers-Danlos Syndrom (EDS). Kathy has the Vascular Type of EDS, fromerly EDS Type IV.
Ehler-Danlos Syndrome Hopes To whom it may concern: I am sending this messages to all physicians and researchers in the medicine world, where there is still a lot diseases with no medicine.. I send this message to every human all over the world, I don t care about place, all what I care about is reading somebody who can help me and give me some hope. I didn t find in my country any treatment, ...
Our group provides support for individuals and families from Michigan and Indiana with Ehlers-Danlos Syndrome (EDS), a genetic connective-tissue disorder.
