Welcome to the Canadian Porphyria Foundation's website. We have placed a lot of information on this site and we hope that you will find what you are looking for. We welcome your comments and suggestions. Please feel free to contact us. Thank you. Box 1206 Neepawa, Manitoba, Canada R0J 1H0 Telephone: (204) 476-2800 Fax: (204) 476-2800 E-mail: porphyria@cpf-inc.ca Last Updated: June, 2002 ...

Porphyria Page is a patient guide for all people with this disorder. It contains relavant information and a list of safe and unsafe drugs which can be used. This page has been put together by Professor Michael Moore a world authority on the subject.

THIS SITE IS FREE THANKS TO THE ABOVE SPONSOR LINKS WELCOME & DISCLAIMERS Welcome What Is P.E.S. SYMPTOM CHECKLIST Why Do I Have It Porphyria Information PAIN SCALE To My Doctor TESTING INFORMATION Lab Result Meanings UNSAFE DRUG LIST P450 Drugs Report Unsafe Drugs Safe Anesthetics Dental Anesthetics Nutritional Info Photosensitivity Porph & Med Links Porphyria Specialists Porphyria Types ...

Background This group of bullous disorders are caused by abnormalities in the synthesis of heme. Various enzyme deficiencies lead to accumulation of porphyrin precursors. Clinically, there are three main categories. Acute episodes and no skin changes Acute intermittent porphyria ALA-dehydratase deficiency Acute episodes and skin changes Hereditary coproporphyria Vareigate porphyria Skin changes ...

Where you come for information and links regarding all types of Porphyria Subscribe to porphyrianews Powered by groups.yahoo.com Please sign my Guestbook by clicking the logo above. A Welcome ... Just For You Welcome to the Porph forum , a website designed to give you the basic information you need to know as you research this usually manageable disease. If you are new to Porphyria, or if you ...

Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are rapidly discussed. Pathogenesis constitutes a complex and wide group of enzime deficiencies and is not described above. ...

The Dutch erytropoetic protoporphyria foundation, De Nederlandse stichting voor erytropoietische protoporfyrie ...

King George II and Porphyria Some historians blame the American Revolution on a blood disease--an abnormality of hemoglobin that afflicted King George III, who ruled England at the time. So puzzling were his symptoms that not until this century did medical researchers discover the underlying disorder, called porphyria. At age 50, the king first experienced abdominal pain and constipation, ...

Porphyria (poor/FEAR/eeyah) may be the most misunderstood (and missed) disease of the millenium. Porphyria is a rare, usually inherited, metabolic disorder. It is not a single disease, but a group of at least eight disorders. - dewey decimal 616.399 ...