- Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by Von Hippel-Lindau disease.www.vhl.org
- Von Hippel Lindau Disease: Genetic, Clinical and Imaging Features Peter L. Choyke, M.D., Gladys M. Glenn, M.D., Ph.D., McClellan M. Walther, M.D., Nicholas J. Patronas, M.D., W. Marston Linehan, M.D., Berton Zbar, M.D. Radiology (March) 146:629-642, 1995 Table of Contents Abstract History Clinical Manifestations Genetics Retina Hemangioblastomas CNS Hemangioblastomas Endolymphatic Sac Tumors ...www.cc.nih.gov/ccc/papers/vonhip/toc.html
- Von Hippel-Lindau disease information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.www.ninds.nih.gov/health_and_medical/disorders/vonhippe_doc.htm
- Von Hippel-Lindau Syndrome Who to Contact Where to Go to Chat with Others Learn More About It Web Sites Who to Contact VHL Family Alliance 171 Clinton Road Brookline, Massachusetts, USA 02146 (617) 232-5946 (800) 767-4VHL Fax: (617) 734-8233 e-mail: vhl@pipeline.com VHL (Von Hipple-Lindau Disease) Family Alliance's mission is to improve diagnosis, treatment, and quality of life for people with ...www.familyvillage.wisc.edu/lib_vonh.htm
